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Friday, October 16, 2015

Child has good life during rare disease


So in December, Hanley teamed up with health officials and are doing everything for his life support. It was another of over 540 unifocalization surgeries Hanley has performed at Lucile Packard Children's Hospital for children with complex pediatric heart defects, and with great outcomes. Hanley is trusted by Jordan and his parents.


"Jordan is such a champ,'' said his mother. Jordan got diagnosed with Williams syndrome on his fifth birthday, 2013. Williams syndrome is a rare chromosomal disorder that only effects 1 of 10,000 people in the world.
This disease causes a lot of medicine and severe disabilities.  It also carries a silver lining which is another rare disease. Silver lining prevents people from going into social life which can cause some very bad problems during their childhood.


"Jordan's personality made the process easier to deal with. He never fretted about going to doctor appointments. He was always excited about getting to see the nurses, the woman at the front desk and everyone else in the waiting room,'' Seville said.


Jordan has a heart of a lion, being brave and so excited for what comes next towards him. Hanley, a  doctor, stood on his feet for eight hours fixing the branches in Jordan's body. This occurred last December 10th. This surgery is one of the hardest surgeries in the world.                           

Source: The Sacramento Bee

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